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Cystic Fibrosis

Volume 300: debated on Thursday 13 November 1997

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To ask the Secretary of State for Health what plans he has to improve the care and services available for cystic fibrosis sufferers and their families. [15053]

Over the past 20 years or more there has been progressive improvement in the care of people with cystic fibrosis, reflected in the increasing numbers who survive into adulthood. A follow up study by the Clinical Standards Advisory Group of access to, and availability of, specialist services, completed in 1996, found that access to such services for patients with cystic fibrosis had been improved in most regions since the original study three years earlier. The follow-up report was sent to health authorities and trusts in December 1996 with a request that they consider carefully the suggestions for action, and in particular the need for continuing innovation in contracting. We shall continue to work with health professionals and all those with an interest to improve the care of people with cystic fibrosis and their quality of life.