In 2003, the Department announced £8.5 million central funding to stimulate improvements in care and access to treatment and to ensure the long-term continuing provision of services for people with myalgic encephalomyelitis/encephalopathy and chronic fatigue syndrome (CFS/ME) across England. This resulted in the development of 13 clinical network co-ordinating centres and 36 local multi-disciplinary teams, as well as 11 specialist children and young people teams to support the development of multi-disciplinary CFS/ME services in their designated area.
Funding of these services from 2006-07 is included within the resource allocations to primary care trusts (PCTs), to facilitate the continuation of services following the end of the ring-fenced period of funding. CFS/ME services are therefore considered as part of the future local planning of services and PCTs can take steps to ensure the establishment of further CFS/ME services, where there is local need.
National health service organisations are expected to demonstrate that they are making progress towards achieving the level of service quality described in the national service framework (NSF) for long-term conditions. The NSF sets out a clear vision of how health and social care organisations can improve the quality of care, consistency and responsiveness of their services and help improve the lives of people with neurological conditions, including CFS/ME. The Healthcare Commission and the Commission for Social Care Inspection can undertake performance reviews to assess progress on local implementation of the NSF.