We have received one recent email from a Guillain-Barre syndrome support group regarding access to intravenous immunoglobulin treatment for those living with chronic inflammatory demyelinating polyradiculoneuropathy (CIDP).
The National Institute for Health and Clinical Excellence can undertake technology appraisals only for treatments licensed in the United Kingdom. Currently there are no intravenous immunoglobulin drugs licensed for the treatment of CIDP.
It is the responsibility of primary care trusts, working with local health professionals, to ensure all patients have access to the most suitable drugs and treatments for their disease. This may include the use of medications ‘off-licence’ if considered appropriate.