None. In general, guidance on issues of practice is a matter for the appropriate professional or regulatory bodies. In addition, local national health service organisations may decide to issue guidance to help practitioners deal with issues which are of particular relevance to their local population.
The Human Genetics Commission supports the need for proper provision of education and information about marriage within a kin-ship group. This should entail access to counselling and support, preferably in the individual’s or couple’s preferred language, and a no-blame approach that enables at-risk couples to come forward for testing. Those wanting specific advice on their individual risk should consult a clinical geneticist or genetic counsellor in their local NHS regional genetics centre.
From next year the curriculum for trainee general practitioners will include learning objectives to equip them to refer patients at risk of genetic conditions appropriately and to appreciate the importance of considering a patient’s cultural and religious background and beliefs concerning inheritance in providing care. These have been developed by the Royal College of General Practitioners in partnership with the NHS national genetics education and development centre, an initiative funded by the Department to identify health care practitioners’ genetics educational needs and encourage the integration of genetics into pre- and post- registration courses and continuing professional development.