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Cystic Fibrosis

Volume 455: debated on Wednesday 10 January 2007

To ask the Secretary of State for Health (1) what research her Department has carried out into the relative benefits of (a) preventative treatment and (b) treatment once infection has been detected for cystic fibrosis sufferers; what guidance has been issued to hospitals in light of that research; and if she will make a statement; (105159)

(2) what level of funding has been allocated to preventative treatment programmes for cystic fibrosis sufferers in (a) west Sussex and (b) the south-east of England in (i) 2006-07 and (ii) 2007-08.

[holding answer 7 December 2006]: We are not aware of any research conducted by the Department into the benefits of preventative treatment for infections in those with cystic fibrosis. However, there is a large body of research and clinical guidance, published in this country and abroad, which supports the effectiveness of preventative treatment programmes to clear airways and teach breathing techniques in the management of this condition.

Information on expenditure levels for CF preventative treatment programmes is not collected centrally. Funding for these services is provided through practice-based commissioning, primary care trust commissioning or specialised commissioning groups.

To ask the Secretary of State for Health what support her Department gives to preventative treatment programmes for cystic fibrosis sufferers; what input her Department has had on the current consultation at the Royal Alexandra hospital for Sick Children in Brighton on the future of the preventative treatment programme at that establishment; and if she will make a statement. (105162)

[holding answer 7 December 2006]: We are not aware of any research conducted by the Department into the benefits of preventative treatment for infections in those with cystic fibrosis. However, there is a large body of research and clinical guidance, published in this country and aboard, which supports the effectiveness of preventative treatment programmes to clear airways and teach breathing techniques in the management of this condition.

The consultation at the Royal Alexandra children’s hospital in Brighton is a local matter.