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Myasthenia Gravis

Volume 457: debated on Monday 19 February 2007

To ask the Secretary of State for Health what estimate she has made of the prevalence of myasthenia gravis; what steps the Government is taking to support those who are diagnosed with the disease; and if she will make a statement. (119167)

I have made no estimate of the prevalence of myasthenia gravis.

Patients with myasthenia gravis are able to access a range of national health service and social care services, which are tailored to meet their individual needs, to help them manage their condition. It is for primary care trusts, in consultation with other stakeholders, to determine which services, including those for people with myasthenia gravis, their local populations require and to ensure the appropriate provision of these services.

The National Service Framework (NSF) for long-term conditions is supporting local sustained improvements in service quality for people with long-term neurological conditions, including myasthenia gravis. The NSF addresses a range of key issues including the need for equitable access to a range of services, good quality information and support for patients and carers, the ability to see a specialist and get the right investigations and diagnosis as quickly as possible.