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Motor Neurone Disease: Research

Volume 458: debated on Thursday 22 March 2007

To ask the Secretary of State for Health how many representations she has received on funding for motor neurone disease (MND) research; whether her Department has conducted an assessment into the effectiveness of MND research; and if she will make a statement. (127517)

The Department has received a number of representations on this subject, mostly from or prompted by the Motor Neurone Disease Association. The response to them has described the nature and level of Government investment in research into the disease, and the fact that the Dementias and Neurodegenerative Disease Network will give patients from every motor neurone disease clinic in England the opportunity to take part in national clinical trials.

The reliability and validity of outputs from research funded by the Department, including research designed to support policy development, implementation and evaluation, are subject to independent peer review. The national service framework for long-term neurological conditions was informed by specially commissioned research, and its impact is being assessed via a £1 million research initiative.

Note:

Dementias and Neurodegenerative Disease Network was launched in September 2005 as part of the United Kingdom clinical research network.