Skip to main content

Diseases: EU Action

Volume 486: debated on Thursday 22 January 2009

To ask the Secretary of State for Health what steps he is taking in response to the European Commission’s November 2008 Communication on Rare Diseases, Europe’s Challenges, COM (2008) 679. (249521)

We broadly welcome the Council’s Communication on Rare Diseases and the opportunity it presents for gathering further expertise, exchange of information and best practice between member states.

United Kingdom Government representatives are now involved in continuing negotiations at the European Council about an EC recommendation about action on rare diseases, which we understand is intended to be published under the Czech presidency.