The Government support the availability of treatment services for thalassaemia that fit the model outlined in “High Quality Care for All”, that care should be fair, personalised, effective and safe.
Key to this is the development of clinical networks of specialist care and the concept that every patient should have access to optimal specialist management and care, as well as routine care provided conveniently close to home. Clinical networks for Haemoglobinopathy disorders (thalassaemia and sickle cell) have now been established and initial meetings of stakeholders have taken place.
We are also currently undertaking a peer review of service provision and commissioning arrangements for haemoglobinopathies. This will inform a programme of supportive action later in the year, in partnership with the national health service and stakeholders.