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Genetics

Volume 497: debated on Wednesday 14 October 2009

To ask the Secretary of State for Health what funding his Department has provided for translations research on single-gene disorders since the publication of the genetics White Paper in 2003. (291770)

The information requested is shown in the following table.

Actual and planned expenditure on single gene disorder (SGD) research: 2003-14

Departmental funding stream

Start date

End date

Expenditure to date (£ million)

Planned expenditure (£ million)

Genetics White Paper: gene therapy research programme

2004

2010

3

National Institute for Health Research (NIHR) Biomedical Research Centres

2007

2009

2.3

n/a

NIHR Collaborations for Leadership in Applied Health Research Care

2007

2010

0.05

NIHR Health Technology Assessment

2005

2013

1.4

1.8

NIHR New and Emerging Applications of Technology

2006

2009

0.3

NIHR Programme Grants for Applied Research

2009

2014

2

NIHR Research for Patient Benefit

2010

2012

0.2

Policy Research Programme

2006

2010

15.8

n/a = not available

1 This figure includes the total funding allocated by the Department to the National Perinatal Epidemiology Unit. Only one of the Unit's five work streams is relevant to SGD but we do not have the means separately to identify the cost of that work stream.

Note:

Planned expenditure figures are a snapshot of the position at September 2009. Actual expenditure in future years will depend on a number of presently unknown factors, including the possible allocation of funds to new studies.

The NIHR Clinical Research Network is additionally providing national health service research infrastructure support to 16 SGD-related studies.

The Medical Research Council (MRC) also invests in genomic research and genomic medicine. The MRC receives its grant in aid from the Department for Business, Innovation and Skills.