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Muscular Dystrophy: Continuing Care

Volume 497: debated on Wednesday 14 October 2009

To ask the Secretary of State for Health what plans he has for the provision of continuing care for people with (a) Duchenne muscular dystrophy and (b) other single-gene disorders. (291767)

A revised “National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care” was published in August 2009. This framework covers those with Duchenne’s muscular dystrophy and other single-gene disorders as the eligibility criteria for continuing care is not disease specific. A copy of the framework has been placed in the Library.