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Sickle Cell Diseases

Volume 501: debated on Wednesday 2 December 2009

To ask the Secretary of State for Health what assistance his Department provides to schools in respect of education on sickle cell anaemia. (302904)

The main health contact for schools is likely to be a school nurse. The school health service can provide guidance on medical conditions, including sickle cell anaemia; help schools draw up individual health care plans for pupils with medical needs; supplement and augment information provided by parents and the child's general practitioner; and advise on training for school staff in administering medicines and in taking responsibility for other aspects of support.

To ask the Secretary of State for Health how much his Department has spent on raising the level of public awareness of sickle cell disorders in each year since 1997. (302906)

The Department has funded the NHS Sickle Cell and Thalassaemia Screening programme to develop materials for public information (including information on screening, carrier status and a parents’ handbook on children with sickle cell disease) and to undertake a number of public outreach projects in areas where there is a high proportion of black and minority ethnic populations who may have difficulties accessing health care services. For the four years, 2005-06, 2006-07, 2007-08 and 2008-09, the programme spent a total of more than £2 million. No figures before this are available.

In addition, the Department awarded the Sickle Cell Society a Section 64 grant of £20,000 over two years (2003-04 and 2004-05) for health education. A Third Sector Investment programme project grant of some £258,000 has recently been awarded to the Sickle Cell Society for three years (2009-10, 2010-11 and 2011-12) for a named National Support Care Advisor for sickle cell disorders.

To ask the Secretary of State for Health how much his Department has spent on services for those with sickle cell anaemia in each year since 1997. (302907)

To ask the Secretary of State for Health how many cases of sickle cell anaemia have been diagnosed in each year since 1997. (302910)