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Muscular Dystrophy

Volume 506: debated on Wednesday 24 February 2010

To ask the Secretary of State for Health if he will take steps to increase the number of centres for the treatment of Duchenne muscular dystrophy. (316865)

It is the responsibility of local health bodies to ensure they have appropriate facilities available for the care of those living with Duchenne muscular dystrophy.

Neuromuscular services, including those for muscular dystrophy, are included within the Adult Neurosciences Chapter of the Third Edition of the Specialised Services National Definitions Set (SSNDS). SSNDS helps hospitals to provide soundly based costings and commissioners to effectively plan, procure and monitor specialised services activity. The third edition of the set will improve the precision and coverage of the definitions, incorporating the most up to date diagnosis and intervention codes to make the SSNDS as comprehensive as possible.

The National Specialised Commissioning team has brought to Specialist Commissioning Groups attention the key issues arising from the Muscular Dystrophy Campaign ongoing awareness campaign.

The Government’s National Service Framework (NSF) for Long-term Conditions focuses on improving the standard and quality of services for people with neurological conditions including muscular dystrophy. The aim of the NSF is to ensure all those with these conditions will get faster diagnosis, more rapid treatment and a comprehensive package of care.