The National Dementia Strategy calls for all acute trusts to identify a clinical lead for dementia to take the lead for quality improvements in dementia in hospitals, including the development of an explicit care pathway for the treatment and care of people with dementia in hospital.
Provision of information to people with dementia and their carers was identified as a priority in the National Dementia Strategy. The Strategy states that following diagnosis people with dementia should be given access to information. The demonstrator site pilots are also looking at how to provide information to people with dementia following a diagnosis.
The Department has commissioned the Alzheimer’s Society to bring together evidence about information that people need following diagnosis and report back to the Department on what might be done to improve the information available. The results of this review are expected shortly.
In 2008-09 there were 232,430 people with a diagnosis of dementia, recorded on practice disease registers in England under the national Quality and Outcomes Framework scheme.
No data are held on the number of carers of people with a diagnosis of dementia. However, guidance issued to support the Quality and Outcomes Framework makes clear that practices in reviewing the needs of people diagnosed with dementia should focus on support needs of both the patient and their carer.
In 2008-09 there were 169,438 people diagnosed with dementia whose care had been reviewed in the previous 15 months and for whom practices received a reward payment under the national Quality and Outcomes Framework.