No such discussions have been held with the West Midlands Strategic Health Authority on access to specialist care for people in the West Midlands region.
The number of patients in the West Midlands diagnosed with muscular dystrophy and related neuromuscular conditions is approximately 5,000.
It is the responsibility of primary care trusts to ensure the provision of services for neuromuscular dystrophy patients in that region, including access to national health service funded muscular dystrophy care advisers.