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Neuromuscular Services

Volume 533: debated on Tuesday 18 October 2011

11. What assessment he has of the provision of ventilation machines and related equipment for patients with muscle-wasting diseases who experience respiratory difficulties; and if he will make a statement. (74857)

Local health bodies have responsibility for ensuring that adequate provision of health services is made available to those living with neuromuscular conditions. All specialised commissioning groups have now completed their reviews of neuromuscular services, which are a priority in the annual work plans of each of the specialised commissioning groups in 2011-12.

I thank the Minister for that answer, but will he also outline the steps being taken to ensure that there is adequate knowledge about neuromuscular conditions among general practitioners and health professionals in Lincoln, so that referrals to the specialist respiratory service in Nottingham can be provided as appropriate?

My hon. Friend is right to raise the issue of ensuring sufficient awareness of the pathways that exist for people to gain access to those services. I understand that the east midlands specialised commissioning group has recently carried out a review of non-invasive ventilation services. I shall ask the group to write to him in more detail.