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Health: Haemophilia

Volume 711: debated on Monday 15 June 2009

Questions

Asked by

To ask Her Majesty's Government further to the Written Answer by Lord Darzi of Denham on 14 May (WA 229–30) on the implications for haemophilia patients of a post-mortem having found vCJD in the spleen of one such patient, what was the outcome of the CJD Incidents Panel's consideration of the case and its implications on 20 May; who attended the panel's meeting; and why it was not held nearer to the date of the postmortem. [HL3959]

The Creutzfeldt Jakob disease (CJD) incidents panel, at its meeting on 20 May 2009, reviewed all available information in relation to the postmortem finding of abnormal prion protein associated with variant CID (vCJD) in a sample from the spleen of a haemophiliac.

The panel concluded that there is no evidence to change the current advice to those patients who used United Kingdom sourced pooled plasma products between 1980 and 2001 already notified as being at risk of vCJD for public health purposes, or to notify any new groups of patients.

Letters confirming this conclusion will be sent to UK Haemophilia Centre Doctors with information to pass on to their patients.

The panel meeting was attended by:

Chairman

Mr David Pryer

Lay Chairman

Deputy Chairman

Professor Don Jeffries

Virology

Members

Dr Miles Allison

Gastroenterology

Dr Gerry Bryant

Public Health Medicine

Professor Geoff Craig

Dental Surgery

Dr Pat Hewitt

Blood Safety

Professor James Ironside

TSE Infectivity, Neuropathology

Mrs Diana Kloss

Law

Professor John Lumley

General Surgery

Mrs Caroline Ness

Lay Member

Dr Derek Norfolk

Haematology

Mr Ian Pearce

Ophthalmology

Dr Patrick Radford

Anaesthesiology

Dr Geoff Ridgway

Microbiology

Professor John Saunders

Medical Ethics

Ms Gillian Turner

Patient Support

Dr Hester Ward

Epidemiology

Professor Bob Will

Neurology

Ms Kate Woodhead

Theatre Nursing

Dr Tim Wyatt

Microbiology

Observers

Dr Peter Bennett

HPIH&SD Analytical Team, Department of Health

Mr Stephen Dobra

HPIH&SD Analytical Team, Department of Health

Dr Sara Hayes (from fpm)

National Assembly of Wales

Miss Charlotte Mirrielees

Scientific Secretary, ACDP TSE Working Group

Mr Mark Noterman

Department of Health

Visitors

Prof Frank Hill

UK Haemophilia Centre Doctors' Organisation

Dr Peter Rudge

Neurology

Secretariat

Dr Nicky Connor

Health Protection Agency Centre for Infections

Ms Dominique Brookes

Health Protection Agency Centre for Infections

Ms Helen Janecek

Health Protection Agency Centre for Infections

Dr Elizabeth Rudd

Health Protection Agency Centre for Infections

Dr Akram Zaman

Health Protection Agency Centre for Infections

The meeting was held after all the evidence in this case, including multiple sets of case notes, hospital records and records of blood product usage, had been collected and reviewed and a full risk assessment prepared. Papers about this case are being prepared for publication and the risk assessment will be published on the department's website at dh.gov.uk on 9 June 2009.

Asked by

To ask Her Majesty's Government further to the Written Answer by Lord Darzi of Denham on 14 May (WA 229–30), whether it remains the view of the Chief Medical Officer at the Department of Health that any risk to haemophilia patients of contracting vCJD from blood given from donors who subsequently died of vCJD is hypothetical. [HL3960]

There have been no clinical cases of vCJD amongst people with haemophilia who have been treated with United Kingdom-derived pooled plasma products or UK-derived coagulation factors. The view of the department, the chief medical officer and the Health Protection Agency remains that first set out in 2004, that patients who have been treated with UK-sourced pooled factor concentrates and antithrombin between 1980 and 2001 are at increased risk of vCJD for public health purposes.

Asked by

To ask Her Majesty's Government what is their assessment of the statement by Lord Thomas of Gresford on 23 April (Official Report, House of Lords, col. 1613) in the debate on the use of NHS blood products contaminated with HIV and hepatitis C in the treatment of haemophilia patients that if Ministers chose to back-date as necessary the waiving of Crown immunity it would still be possible for actions to be brought by those afflicted or bereaved by the contamination. [HL3961]

Crown immunity did not protect from civil suit, but only from prosecution under the Medicines Act. Some affected persons did bring an action in 1990, which was settled out of court. Affected persons did and do therefore have rights of redress in civil law.