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Medical Records: Databases

Volume 475: debated on Thursday 8 May 2008

To ask the Secretary of State for Health what the reasons are for deciding that (a) individuals may not opt out of having their demographic data placed on the Spine and (b) not having demographic data on the Spine will prevent individuals accessing NHS treatment; and whether he informed the Health Committee during their recent review of the NHS patient record that individuals would not be able to opt out of having their demographic details on the Spine. (202328)

I refer the hon. Member to the answer I gave him on 22 April 2008, Official Report, column 1990W. The relevant information in that answer reflects information provided in paragraphs 23 and 24 of the Department's written evidence to the Health Select Committee, published by the Committee on 25 April 2007.

To ask the Secretary of State for Health who is undertaking the independent evaluation of the electronic patient records pilot; what their terms of reference are; and when the report will be published. (202380)

The independent evaluation of the Summary Care Record (SCR) Early Adopters Programme is being carried out by a team from the Department of Primary Care and Population Sciences at University College London, led by Professor Trisha Greenhalgh.

The agreed aims of the evaluation are to assess usability, usage, functionality and impact of the SCR in early adopter sites, and place this in context; to set the stage for the inclusion of further sites and further data sources; to provide timely feedback to stakeholders; and to contribute to the evaluation culture within NHS Connecting for Health and the National Programme for IT.

The report was published by the evaluation team on 6 May and is available via the University College website at:

and the website of the NHS Connecting for Health Evaluation Programme, which is based at the University of Birmingham, at: